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Studies with Adults

Akin to difference: An ethnographic investigation into the everyday experiences of lesbian, gay, bisexual, transgender or queer (LGBTQ) parents of children with 'special needs’

Are you a parent of a child with special needs or disabilities? Are you also lesbian, gay, bisexual, transgender or queer (LGBTQ)?
I am a doctoral student in social work at the University of Toronto. I am currently interviewing LGBTQ parents who have children with suspected or identified special needs.  
Interviews will last 1-2 hours and participants will receive $30 for their time, plus expenses. We would meet at a time and place that is convenient for you. I am hoping to talk to parents from a range of experiences and identities, including diverse gender and sexual identities, racial and ethnic identities, economic backgrounds, and family structures.
If you are interested in more information about this project, or you know of anyone who might be interested in participating, please contact me at (416) 890-0357 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Autism Research at York University

The Children’s Learning Projects Research Lab at York University is looking for participants! We are a research team led by Dr. James Bebko at York University. Our team is dedicated to the study of how children, adolescents, and adults learn about, process, and understand their world. Our research team investigates the language abilities and cognitive skills in typically developing children, children with Autism Spectrum Disorder (ASD), Intellectual Disabilities, Deafness/deafness and Attention Difficulties (ADHD/ADD).
We are looking for participants between the ages of 3 and 40 years with Autism Spectrum Disorder (including Asperger Syndrome).
We are also looking for participants with Attention Deficit Hyperactivity Disorder and Attention Deficit Disorder between  the ages of 6 – 16 years.  We have several ongoing studies, all of which take between 1 -2 hours.
Please Contact us: Children’s Learning Projects Lab
Phone: 416-650-8495  Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Web: https://bebko.apps01.yorku.ca/clp/

The Government of Canada's study about government programs for persons with disabilities

Are you a person with a disability or the immediate family member of a person with a disability?
The Government of Canada is conducting a study about government programs for persons with disabilities and issues related to saving for the future.
If you or your immediate family member with a disability is in receipt of the federal Disability Tax Credit, you might be eligible for the study.
As a participant in this study, you will be asked to participate in:
1) a 2 hour focus group or
2) a 40 minute telephone interview.
In appreciation for your time, you will receive a $75 cash honorarium.
To volunteer for this study, please contact us at 1-866-770-4649 and leave a message with your name and telephone number. Someone will call you back to confirm your eligibility for the research.
This study is being conducted on behalf of the Government of Canada by Phoenix SPI, an independent Canadian research firm.
Your personal information will be treated in complete confidence.

Wisdom & Identity of People with Autism and their Relations to Quality of Life: A Cross-Cultural study

Overview: This study will explore the wisdom and identity of individuals with high-functioning autism/Asperger Syndrome and their quality of life.

Participants: Males over 16 years of age diagnosed with high functioning autism/Asperger syndrome

What does participation involve? Interviews will be conducted in the participants’ native language. Each participant will meet with the experimenter for one session lasting about 45-90 minutes and will be asked a few questions about their own lives, the best decisions they have made in their lives, and ideal exemplars of wisdom. The study will also use standardized measures of wisdom and aspects of identity and well-being.

Confidentiality: Participants’ names will be kept secret; only pseudo names will be used.

Token of appreciation: The participants will receive a $20 gift certificate as a token of appreciation for participating in the study.

Contact: Aftab Khan (Human Development & Applied Psychology-OISE, University of Toronto)
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Phone: 416-880-6216

Emotional Processing and Behavioural Control Study at theFunctional Neuroimaging Lab, SickKids

This study will investigate developmental patterns of brain activation during emotional processing and behavioural control in children and adolescents with autism spectrum disorder (ASD). MEG (magnetoencephalography), a silent brain scanner, will be used to examine brain activation while participants perform a simple computer task.
We are looking for:
1. Children between 7-10 years old who have no known metal in their bodies with (a) normal school and medical histories OR (b) diagnosed with ASD.
2. Teenagers between 12-17 years old who have no known metal in their bodies with (a) normal school and medical histories OR (b) diagnosed with ASD.
All participants will undergo neuropsychological and neuroimaging testing and will receive a gift for participating, volunteer hours, as well as pictures of their brains.
Contact name: Rachel Leung Telephone: 416-813-7654 ext. 4299
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Health Service Use Among Adolescents and Adults with ASD - A Family Study

Are you a Parent of a teenager or adult with Autism Spectrum Disorder (ASD)? Would you like better health services in Ontario for your teenage or adult son or daughter?

What has your experience been like using health services such as doctors, dentists or psychologists for your son or daughter? We have heard stories from parents describing both poor and excellent care. We want to understand better why things work well, and why they fail. It is only with your involvement as parents that we can learn what works and what doesn’t and share this formation with doctors and other health professionals, government and families like you to bring about change.

This project will ask you questions about your recent contact with health professionals regarding your adolescent (12+) or adult son or daughter with ASD. The first set of questions takes about 30 minutes, and follow‐ups over the next year take 10 minutes or less. We want to know if your son or daughter is getting the health care he or she needs, what types of health services he or she is using and your atisfaction with these services. Also, if you are not using any services, we would like to know why and whether you are satisfied with your situation. Your voice is important and we need to hear from you!
Parents will receive an honorarium for their time.
If you would like to participate, click on the following link:
http://www.surveymonkey.com/s/Family_Study_Consent
or call Maggie Slusarczyk at Tel: 416‐535‐8501 Ext 7806. This project is funded by CIHR #MOP-102677
Download the flyer.

Healthcare Survey for Adults with Asperger Syndrome

Are you an Adult with Asperger Syndrome? Would you like better health services in Ontario?

What has your experience been like using health services such as doctors, dentists or psychologists? We have heard stories from individuals describing both
poor and excellent care. We want to understand better why things work well, and why they fail. It is only from hearing your experiences that we can learn what works and
what doesn’t and share this information with doctors and other health professionals, government and people like you to help bring about change.

This project will ask you questions about your recent contact with health professionals. The first set of questions takes about 30 minutes, and follow‐ups over the next year take 10 minutes or less. We want to know if you are getting the health care you need, what types of health services you are using and your satisfaction with these services. Also, if you are not using any services, we would like to know why and whether you are satisfied with your situation. Your voice is important and we need to hear from you!
You will receive an honorarium for your time. If you would like to participate, click on the following link:
http://www.surveymonkey.com/s/AdultsAspergerStudyConsent
or call Maggie Slusarczyk at Tel: 416‐535‐8501 Ext 7806.
This project is funded by CIHR #MOP-102677
Download the flyer.

Family Study on Healthcare Services of Teens and Adults with ASD

Researchers from the Dual Diagnosis Program at the Centre for Addiction and Mental Health are looking for parents of teens (16+) and adults with ASD. Our current project examines the types of health services used by adolescents and adults with ASD and the related experiences of family members (namely parents) who provide care to these individuals. Parents will be asked to fill out an initial background questionnaire. Parents will also be contacted on a bi-monthly basis for one year to better understand the types and frequency of healthcare services used for that period as well as their satisfaction with those services. Parents will be able to complete these surveys online, by mail or over the phone. Our goal is to be able to improve health services for this population.

Researchers: Dr. Yona Lunsky, Dr. Jonathan Weiss, Dr. Elspeth Bradley,
Dr. Anna Palucka and Dr. David Flora.
For more information or to sign up to participate, please contact Maggie Slusarczyk at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 416-535-8501 ext 7806.

The Impact of Individuals with Special Needs on their Typically-Developing Siblings over a Lifetime

We are trying to gain insight into the experience of being an adult sibling of a person with special needs. We hope that you will consider participating in our study by clicking on this link: http://www.surveymonkey.com/s/Adult-Sibling-Survey . It is our hope that by surveying numerous adults (18 years or older) that have a sibling with special needs, we will be able to develop a deeper understanding of this relationship in an effort to help as many people as possible.

Researchers: Morgan Blueglass, Elyse Blueglass, Amanda Buona
Contact: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Supervisor: Anne Kaiser, Vanderbilt University

To participate in the survey, please click on this link:
http://www.surveymonkey.com/s/Adult-Sibling-Survey

Estimating numbers: assessing capacities in adults with Autism Spectrum Disorders

Researchers in Diagnostic Imaging at SickKids Hospital and Holland Bloorview Kids Rehabilitation Hospital are looking for young adults (20-30 years old) with the diagnosis of high functioning autism spectrum disorder or Asperger syndrome, to participate in a number estimation study, an ability that is often highly developed in people with autism spectrum disorders. By examining the magnetic fields emitted from the brain (using magnetoencephalography (MEG)) when people perform a number estimation task, we can determine how the brain processes number estimation and how the brain activity changes with increased skill in this ability. A structural MRI of the brain will also be obtained.
Researchers: Dr. Magali Batty, Dr. Margot Taylor, Dr. Wendy Roberts and Dr. Evdokia Anagnostou
For more information or to sign up to participate, please contact Vivien Tsen at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call 416 813-7654 ext 4299

Adults Count! A Survey on Adults with Autism Spectrum Disorders in Ontario.

Adults Count LogoResearchers: Kevin Stoddart, Lillian Burke, Barbara Muskat, Jason Manett, Claudia Accardi, Sarah Duhaime And Robert King The Redpath Centre And University Of Toronto

Download the flyer

It has been two decades since there has been a provincial survey on adults with Autism Spectrum Disorders in Ontario. Since the 1990s, there have been major changes to the population of adults that are identified with an Autism Spectrum Disorder.

Many adults seen in clinical practice report that their ASD and related symptoms provide challenges that are not addressed.

Adults Count! is a province-wide survey that will provide important information of the profiles and needs of youth and adults on the Autism Spectrum.

To receive information about Adults Count! or to participate in this survey, contact us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 416-920-4999 x 0165 or www.redpathcentre.ca

Mediators of Motor Skills and Praxis in Adults with Autism Spectrum Disorder

The primary purpose of this study is to evaluate the movement and coordination (motor skills) of adults with and without disabilities. Participants must be adults between the age of 18 and 40 and have a diagnosis of high functioning Autism or Asperger Syndrome. Participation in this study includes four visits comprised of an interview, completion of a questionnaire and participation in motor exams. The results of your individual testing will be available to you at the end of your participation. You will receive $25 per visit for your time and the expenses related to transportation for this study.
Researcher: Dr. Latha Soorya
Contact: Natasha Ludwig - Clinical Research Coordinator
Seaver and NY Autism Center of Excellence
Mount Sinai School of Medicine
New York: 212-241-2826
e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it