- Maternal Experience of Raising a Child with a Developmental Disability
- Treatment of Overweight Induced by Antipsychotic Medication in Young People with Autism Spectrum Disorders
- Intranasal Oxytocin for the Treatment of Children and Adolescents with Autism Spectrum Disorders (ASD)
- Autism Research at York University
- University of Toronto Study about how teenagers read fiction
- Online survey - Characteristics of Individuals with High-Functioning Autism Spectrum Disorder.
- Transition to Kindergarten Study for Punjabi or Hindi Speaking Parents
- Test a social perception training computer game
- The Government of Canada's study about government programs for persons with disabilities
- Research Study: Conceptualizations of Sexuality Education for Youth with an Autism Spectrum Disorder
- Study at HollandBloorview Hospital
- Support and learning of handwashing
- Online research study about sensory processing in autism
- Brain Imaging Study at SickKids
- Research on Family's Use of PECS
- Parent opinions on autism intervention requested
- Emotional Processing and Behavioural Control Study at theFunctional Neuroimaging Lab, SickKids
- Exploring the Challenges and Successes of Including Children with ASD in Mainstream Classes
- Communication differences among Canadian children diagnosed with autism, cerebral palsy, and Down syndrome
- York University Research on Parent Stress, Coping, and Resources
- SickKids is looking for children and teens with Autism Spectrum Disorders for research study
- Study of Parenting Strategies
- Study of Children with Autism and Regression
- Treating Obsessive-Compulsive Behaviors in School-Age Children with High Functioning Autism
- Understanding Autism Project
- Family Study on Healthcare Services of Teens and Adults with ASD
- Examining the Lives of Kids with Severe Developmental Disabilities and their Families
- Development of Precursory Language Skills, Non-Verbal Communication Skills and Joint Attention for Children with Autism Disorder: A longitudinal Prospective Approach
- Assessing Treatment Outcomes for Intensive Interventions in Autism
Who is doing this study?
Nidhi Luthra, a PhD student in the Psychology program at York University along with her supervisor Dr. Adrienne Perry, is conducting this study across Ontario.
Goal of the study: To understand the experience of South Asian Immigrant and Canadian mothers raising a child with a DD, in order to identify better ways of supporting mothers.
Participants needed: We are looking for mothers of children with a developmental disability (e.g., ASD, autism, PDD-NOS, Global Developmental Delay, Down's Syndrome, FASD, physical disability etc.):
- Child is 5-21 years old
- Diagnosed atleast 2 years ago
- Mother is a
- South Asian Immigrant (from India, Pakistan, Bangladesh, Sri-Lanka, Nepal or Afghanistan)
- Canadian born (mother is born and raised in Canada; family could be originally from a different country, and mother could identify as Canadian and another culture, excepting South Asian)
- South Asian Immigrant (from India, Pakistan, Bangladesh, Sri-Lanka, Nepal or Afghanistan)
What is involved?
- All participants need to complete a questionnaire. This can be done online OR in a paper pencil format.
- To complete the questionnaire in paper pencil format:
- Call 416-736-2100 ext 40266 and ask for Nidhi Luthra.
- To complete the questionnaire in paper pencil format:
- South Asian immigrant mothers: (Password: matexsa) https://www.surveymonkey.com/s/matex_sa
- Canadian mothers: (Password: matexcan) https://www.surveymonkey.com/s/matex_can
- Follow-up in person interviews will also be conducted with some mothers.
Honorarium: All participants will be offered an honorarium of $35.
Treatment of Overweight Induced by Antipsychotic Medication in Young People with Autism Spectrum Disorders
Principal Investigator: Dr. Evdokia Anagnostou
Purpose: This is a study investigating whether Riomet® (metformin) can decrease weight gain caused by certain medications: Abilify (Aripiprazole), Risperdal (Risperidone), Seroquel (Quetiapine), Zyprexa (Olanzapine), Saphris (Asenapine Maleate), Clozaril (Clozapine), Fanapt (Iloperidone), Latuda (Lurasidone), Zeldox (Ziprasidone), Invega (Paliperidone). These medications are commonly used to improve irritability, agitation, and repetitive behaviours in young people with ASD.
Who: 6 years to 17 years of age with ASD
What: 32 Week (8 Month) clinical trial intervention study taking medication every day. Visits will take place every month plus extra visits for outcome measure assessments and labs.
Where: Holland Bloorview Kids Rehabilitation Hospital
Recruitment:For more information about this study and to see if you’re eligible, please contact:
Intranasal Oxytocin for the Treatment of Children and Adolescents with Autism Spectrum Disorders (ASD)
Principal Investigator: Dr. Evdokia Anagnostou
Purpose: This is a study investigating whether Intranasal Oxytocin (Syntocinon®) helps to improve symptoms of Autism Spectrum Disorder, specifically social functioning (e.g. learning how to talk to others, making friends) and repetitive behaviours.
Who: 10 years to 17 years of age with an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)
What: 24 Week (6 Month) clinical trial intervention study, which involves taking a nasal spray every day for three months, with a follow up visit three months later.
You and your child will first be asked to come in for a screening session; through talking with you and completing some assessments we will determine if your child meets eligibility criteria. If your child meets criteria, then you will then receive either Oxytocin (Syntocinon®) or placebo. Visits will take place every two weeks while your child is taking the drug or placebo.
This study also has an optional continuation part, which means that if you were given placebo, you will be able to take Oxytocin (Syntocinon®) at the end of the six months. The same tests and procedures will be followed that were followed during the main study.
Where: Holland Bloorview Kids Rehabilitation Hospital
Recruitment: For more information about this study and to see if you’re eligible, please contact:
We are looking for participants between the ages of 3 and 40 years with Autism Spectrum Disorder (including Asperger Syndrome).
We are also looking for participants with Attention Deficit Hyperactivity Disorder and Attention Deficit Disorder between the ages of 6 – 16 years. We have several ongoing studies, all of which take between 1 -2 hours.
Please Contact us: Children’s Learning Projects Lab
Are you are parent of a teenager with high functioning autism or Asperger syndrome? Would your son or daughter be interested in a study of how teenagers read fiction? The purpose of our research is to learn about the different ways in which children build up a mental picture of the story when they read fiction. It is important to understand how children interpret the kinds of texts they read in school literature classes. Yet little research to date has examined this, either for typically developing children or children with autism in inclusive classrooms. We would like to work with typically developing children aged 13 and older, and children of the same age who have been diagnosed with high functioning autism (HFA) or Asperger syndrome. Read More...
Online survey - the Asperger Syndrome Diagnostic Scale- Revised: Outlining characteristics of individuals with high-functioning autism
Dr. Stacey Jones Bock from the Department of Special Education at Illinois State University, Drs. Brenda Myles and Richard Simpson are working on an exciting research project entitled, “The Asperger Syndrome Diagnostic Scale- Revised: Outlining characteristics of individuals with high-functioning autism.” They are inviting parents or caregivers and professionals (ie. pediatricians, psychologists, speech language pathologists, occupational therapists, social workers) who have worked with or supported a student with a diagnosis of Asperger Disorder to participate. The purpose of this study is to identify diagnostic characteristics of individuals on the high functioning or previously the ‘Asperger-end’ of the autism spectrum. This information will be used in professional presentations and to inform the revision of the Asperger Syndrome Diagnostic Scale, originally published in 2000.
If you are willing to participate in this project, I would like to ask you to complete a short survey. The completion of the survey will take approximately 10 to 15 minutes.
Please be assured that your participation in this study is absolutely voluntary. There will be no penalties of any kind and your choice to participate will not be divulged to anyone. There is a minimal risk of loss of confidentiality. In order to minimize this risk, I will not collect IP addresses or personal contact information. Please complete the survey in an environment in which you are comfortable. In addition, all survey data will be reported in aggregate in professional presentations and publications. I, Dr. Jones Bock, will store all the data on my password-protected computer under lock and key in my office in DeGarmo Hall or secured in my personal domicile. Computer data will be deleted 5 years after I publish or present the findings.
If you have any questions about this study, please feel free to contact Stacey Jones Bock at (309) 438-7884 or
. If you have any questions about your rights as a participant in this study, please contact the Chairperson of the Institutional Review Board (IRB) at the Research Ethics & Compliance Office at (309) 438-2529.
Research at Illinois State University that involves human participants is carried out under the oversight of the Institutional Review Board. Questions or problems regarding these activities should be addressed to IRB Chairperson, Research Ethics & Compliance Office, Campus Box 3330, Normal, IL 61790-3330, or phone (309) 438-2529.
If you agree to participate in this study, please link to Characteristics of Individuals with High-Functioning Autism Spectrum Disorder and complete the online survey.
What: Our study gives Punjabi or Hindi speaking parents having a child with autism an opportunity to make their voices heard. We would like to hear about your experience when transitioning your child to kindergarten. This research is being conducted by Dr. Elizabeth Starr and Dr. Ben Kuo of the University of Windsor.
Who: We are recruiting Punjabi or Hindi speaking parents of children with autism living in the Greater Toronto Area whose child transitioned to kindergarten in the last 2 or 3 years to participate in a group discussion in Punjabi or Hindi with other parents.
Where: The precise location will be identified later but it will likely be held in Mississauga or Brampton.
When: A weekday evening in May or June. Specific day and time to be determined depending on parent availability. The group will last for 2 hours.
Honorarium: An honorarium of $20 will be given to parents for their participation.
Does your child aged 9-12 have a diagnosis of High Functioning Autism?
Do they struggle with accurately reading and responding to emotions when interacting with others?
If you answered YES – you may be interested in participating in a study that is testing a social perception training computer game.
- A 30-minute computer game is completed for 2 weeks either at home or at Ryerson University
- Training involves watching and interacting with videos of emotional facial expressions
- 3 testing sessions will also take place at Ryerson University
- For our first session, we will compare performance of children with autism to typically developing children on a variety of emotion-related tasks.
- Throughout training, we will be comparing a treatment group and a non-treatment control group.
- 40 eligible children will be assigned to a treatment group or a control group
- We will be looking at gains children make in behaviour, emotion understanding and brain activity related to emotional understanding
Compensation for travel expenses will be provided, and children will be compensated with a gift card.
If you are interested, please contact:
Lucy McGarry, SMART lab, Ryerson University, 416-979-5000 ext. 4989.
Are you a person with a disability or the immediate family member of a person with a disability?
The Government of Canada is conducting a study about government programs for persons with disabilities and issues related to saving for the future.
If you or your immediate family member with a disability is in receipt of the federal Disability Tax Credit, you might be eligible for the study.
As a participant in this study, you will be asked to participate in:
1) a 2 hour focus group or
2) a 40 minute telephone interview.
In appreciation for your time, you will receive a $75 cash honorarium.
To volunteer for this study, please contact us at 1-866-770-4649 and leave a message with your name and telephone number. Someone will call you back to confirm your eligibility for the research.
This study is being conducted on behalf of the Government of Canada by Phoenix SPI, an independent Canadian research firm.
Your personal information will be treated in complete confidence.
Research Study: Conceptualizations of Sexuality Education for Youth with an Autism Spectrum DisorderPurpose:
- To understand what sexuality education means for youth with an Autism Spectrum Disorder and their parents
- To identify some of the supports and barriers that exist for youth and their parents with regards to sexuality education
Who should participate?
- Youth with high-functioning autism/Asperger Syndrome between the ages of 12 and 18
- Parents of youth with high-functioning autism/Asperger Syndrome between the ages of 12 and 18
What is involved?
Participate in a written survey that will take about 30 minutes to complete
This research has received ethics clearance from the University of Ottawa and CHEO Research Ethics Boards
Attention: Child Participants Wanted! Boys and Girls 4-15 years of age
Being able to complete activities of daily living is an important part of a person’s independence. We have developed a computerized system that automatically prompts a child with autism spectrum disorder through the task of handwashing. It is hoped that the device will help increase independence in performing self-care activities through support and learning of handwashing, and eventually, other daily activities.
We are looking for boys and girls who would like to evaluate this new device. Interested participants will have the device installed in their home for a period of 4.5 months to try it out.
Study Time: 4.5 months / Compensation: $250
Your child qualifies for the study if s/he:
- Is between the ages of 4-15;
- Has an ASD clinical diagnosis;
- Has difficulty independently completing self-care activities, specifically hand washing;
- Has the ability to follow simple, one-step verbal instructions;
- Does not exhibit severely aggressive behaviour.
CALL David or Jennifer at (416) 946-8573
In order to better understand how sensory processing differs between clinical conditions, including Autism and Aspergers, and how it relates to various aspects of personality and behavior, we are conducting an online research study.
We are looking for parents of children 7-17 years old and/or adults 18+ years with a diagnosis of an Autism Spectrum Disorder (including Aspergers and PDD-NOS).
The study is conducted entirely online and consists of a series of questionnaires about yourself/your child. This study is completely anonymous and has no bearing on any treatment you or your child may currently be receiving. You can complete all the questionnaires at once or a little at a time, and even completing just a few of the questionnaires would be very valuable.
The information we collect could be useful to further understand the causes of sensory dysfunctions, leading to better therapies to improve the lives of children and families who are affected. Your help would be very much appreciated!
For more information and to participate in this study, go to http://sensorystudy.weebly.com/
We are looking for children ages 7 to 11 years of age with ASD to participate as volunteers in a research study investigating brain development. Volunteers will complete cognition tasks while in the MRI and the MEG, the type of scanners that do not involve any radiation. The study is looking at how the brain works when children are using their working memory. To see how this changes across age, we would like you to come back in two years.
As a thank-you for their time, participants will receive a small gift and pictures of their brain from the MRI scan.
Washington State University is conducting research to discover what parents of children with autism think about a type of autism intervention called video modeling.
Video modeling is an autism intervention that uses video recordings and display equipment (e.g., television, computer monitors, iPads, smart phones, portable DVD players, etc.) to provide a visual model of a targeted behavior or skill.
We are currently conducting a survey to assess the knowledge and attitudes about this intervention. The survey consists of 31 questions and should take 10-20 minutes to complete. Responses will be kept confidential and only be used for academic research. If you are interested in completing the survey, please click here.
Contact: Teresa Cardon, Ph.D, CCC-SLP, Amanda Smith-Treadwell, Washington State University
*This survey has been reviewed by Washington State University's Institutional Review Board, as study #11920.
Emotional Processing and Behavioural Control Study at theFunctional Neuroimaging Lab, SickKids
This study will investigate developmental patterns of brain activation during emotional processing and behavioural control in children and adolescents with autism spectrum disorder (ASD). MEG (magnetoencephalography), a silent brain scanner, will be used to examine brain activation while participants perform a simple computer task.
We are looking for:
1. Children between 7-10 years old who have no known metal in their bodies with (a) normal school and medical histories OR (b) diagnosed with ASD.
2. Teenagers between 12-17 years old who have no known metal in their bodies with (a) normal school and medical histories OR (b) diagnosed with ASD.
All participants will undergo neuropsychological and neuroimaging testing and will receive a gift for participating, volunteer hours, as well as pictures of their brains.
Contact name: Rachel Leung Telephone: 416-813-7654 ext. 4299
Dr. Sally Lindsay is conducting a study to explore the specific experiences that educators encounter in teaching children with ASD within mainstream classes. The research will help to identify successful practices as well as gaps around the inclusion of children with ASD in mainstream classrooms. Participants are invited to take part in a 30 to 45 minute research interview at a time and location that is convenient to them. Recruited teachers and education assistant must have at least 2 years of teaching experience in a mainstream (integrated class); currently teach an integrated class within the Toronto District School Board; and have experience teaching a student with ASD within an integrated class. The results will be used to inform the development of teacher training and disability awareness programs.
If you are interested in participating or would like to have more information about the study, please contact
Sally Lindsay, PhD, Scientist
Room 4W260, Bloorview Research Institute,
Holland Bloorview Kids Rehabilitation Hospital
150 Kilgour Road, Toronto Ontario M4G 1R8
Phone: 416 425 6220 ext. 3654
Communication differences among Canadian children diagnosed with autism, cerebral palsy, and Down syndrome
Dr. Steven Shaw's Connections Lab at McGill University is conducting a study that examines communication differences among Canadian children diagnosed with autism, cerebral palsy, and Down syndrome. Our anonymous, online survey takes less than 20 minutes to complete. Once complete, you have the option of receiving not only the results of the study, but also your child's individual results on the Developmental Profile 3 sub-tests completed. This is useful for understanding your child's strengths and weaknesses in their communication and cognitive abilities as well as their adaptive skills. For more information and to begin the survey, please click here: https://www.surveymonkey.com/s/NDXG89S
Seeking parents and caregivers who have one or more children of any age who are:
- Hearing with an Autism Spectrum Disorder
- Deaf with an Autism Spectrum Disorder
Parents and caregivers will be asked to complete six questionnaires that examine their child's language and behaviour, as well as their perspectives on the services and education that have been received. Parents and caregivers will also be asked questions that explore their experiences as parents. These questionnaires will take approximately an hour to complete. Information about your child's communication skills will be provided to you based on one of the questionnaires.
A team of researchers is seeking children and teens with Autism Spectrum Disorders who have recently been hospitalized. We want to hear about their experiences of hospital care, as well as the experiences of their parents and health-care providers.
Who is eligible to participate?
1. Children/teens who:
- have been diagnosed with any form of Autism Spectrum Disorder
- are between 6 and 18 years of age
- have been hospitalized for at least two days within the last three months at either SickKids in Toronto or the Stollery Children's Hospital in Edmonton.
- are able to communicate verbally or have some means of verbal communication
2. The parents and/or caregivers of these children/teens
3. Paediatric nurses, physicians or other health-care staff
who provided care to the children/teens in the hospital What will you be asked to do?
Take part in an hour-long interview
Parents will also be asked to complete a short questionnaire
Researchers from the Centre for Applied Disability Studies at Brock University invite parents of children between the ages of 2 to 7 years old to participate in a research study of parenting strategies. The purpose is to examine how parents handle child problem behaviours and how confident they may feel. Parents will be asked to complete two questionnaires that will take approximately one hour.
The questionnaires may be returned by mail or by email.
Parents would be eligible to participate if they have a child who is between 2 and 7 years old and has an Autism Spectrum Disorder, or has a developmental delay (for any reason), or is typically developing.
If you are interested in participating or would like more information about this study, please contact one of the following researchers:
A summary of results will be provided to parents after the study has been completed.
Thank you for your interest!
What is the study about?
This study aims to identify and increase our understanding of young children with autism who have had a loss (regression) in language and/or social communication skills. Research has shown that some people with autism have abnormalities in their cells that fight off infection (immune system), and when these cells are overactive they can cause injury to other cells in the body (overactive immune system). Research has also shown that some people with autism have an increase in the production of oxygen molecules that can damage cells and impair their function (oxidative stress). We want to see if regression in children with autism is related to signs of an overactive immune system and/or oxidative stress, and we will compare toddlers with autism and regression to toddlers with autism and no history of regression.
Who can participate?
• Young children aged 18-36 months
• Must have a loss of language and/or social communication skills in the past 6 months
• The skills must have been present for at least 1 month prior to the loss and lost for at least 1 month
• Your child will be assessed and must meet criteria for autism to participate in the study
What are examples of skills my child may have lost?
• Had 2 words or more, used daily and spontaneously, other than "mama" or "dada"
• Responded to name when called
• Smiled in response to others smiling at him/her
• Pointed at an interesting object
• Had eye contact when interacting
• Waved "bye bye" on their own when someone left
• Showed things by extending their arm
What does the study involve?
If you are interested, you will be contacted by the research coordinator for a telephone interview to see if your child can be in the study. If your child is eligible, you will be invited for an assessment at the Autism Treatment Network site which will include a review of your child's medical history and development, as well as some tests to observe your child's social communication skills as well as thinking and problem solving abilities. Routine medical tests including blood and urine tests will be completed to screen for a metabolic disorder (abnormalities in chemical reactions within the cells of the body). The blood will also be tested for signs of an overactive immune system and oxidative stress. Results of the research testing will only be reported to you if a medical disorder is suspected and further testing is needed.
What are the risks and benefits of participating?
Your child will receive thorough medical testing through clinical blood and urine testing that will be screened for possible metabolic and inflammatory disorders that may contribute to your child's developmental problems. In addition, your child will receive an assessment of early learning. We will require an additional 1 teaspoon of blood to help us understand if an overactive immune system or oxidative stress is related to regression in children with autism.
Please feel free to contact Melanie Fenwick at 416 925 5141 x 2527 for more information.
This study is part of the Autism Intervention Research Network-Physical (AIR-P) and the Autism Treatment Network, and is funded by a grant from HRSA (the Health and Services Administration
of the US Department of Health and Human Services).
- frequent cleaning or washing
- repeatedly asking for reassurance
- engaging in daily rituals (e.g.,checking the weather)
- counting or checking things
- a need to rearrange or have things "just so"
- a need to complete daily activities, play activities, or schoolwork in a certain way
- resistant to throw things away even if they are no longer of use
These are just a few examples of Obsessive-Compulsive Behaviors. Approximately 1 in 5 children with Autism have Obsessive Compulsive Disorder.
Children often become distressed if they are not able to perform these behaviors. They can impede quality of life for children and their families. Therefore, it is important to treat them as early as possible.
If any of the above behaviors sound familiar, your child may have Obsessive-Compulsive Disorder and be eligible for Group Cognitive-Behavior Therapy at no cost!
The Behavioral Autism Research Team at Brock University is currently recruiting children between 7 and 12 years of age with a diagnosis of High Functioning Autism (HFA) or Asperger's Syndrome (AS) for a research study.
For more information, please click here.
We are researchers at Columbia University's Institute for Social and Economic Research and Policy studying autism. We are currently collecting life stories from parents about their experiences in recognizing their child's autism, seeking professional help and navigating the system of services.
The goal of this project is to gain a better understanding of the road to diagnosis. Parents have different experiences and observations of their child's development and they have different personal resources with which they access care and services. Parents also differ in the type and extent of their support networks and social relations. And finally parents make different decisions in their quest for obtaining the right diagnosis and care for their child. We are eager to hear about how these factors affected your experience and your child's experience with autism.
We are collecting stories though an online semi-structured survey at our website: www.understandingautism.columbia.edu.
Peter Bearman, Principal Investigator
Cole Professor of the Social Sciences
Researchers from the Dual Diagnosis Program at the Centre for Addiction and Mental Health are looking for parents of teens (16+) and adults with ASD. Our current project examines the types of health services used by adolescents and adults with ASD and the related experiences of family members (namely parents) who provide care to these individuals. Parents will be asked to fill out an initial background questionnaire. Parents will also be contacted on a bi-monthly basis for one year to better understand the types and frequency of healthcare services used for that period as well as their satisfaction with those services. Parents will be able to complete these surveys online, by mail or over the phone. Our goal is to be able to improve health services for this population.
Researchers: Dr. Yona Lunsky, Dr. Jonathan Weiss, Dr. Elspeth Bradley,
Dr. Anna Palucka and Dr. David Flora.
The Great Outcomes for Kids Impacted by Severe Developmental Disabilities project – GO4KIDDS – is a university based research study examining the health, wellbeing and social inclusion of kids with severe developmental disabilities (DD) and the experiences of their families. We are conducting a series of research projects including surveys, interviews, direct observation and case studies.
There are currently two Surveys (a Basic Survey and an Extended Survey) intended for parents of children who have a severe DD. By severe DD, we mean children with an intellectual/developmental disability in the moderate, severe, or profound range. Children may also have been described as having a global developmental delay, developmental handicap, or mental retardation. The survey is not for children with Asperger's or other high functioning Autism Spectrum Disorders, learning disabilities, or mild or borderline developmental delays. The age range we are studying is school-aged children (approximately age 6 to 18). Both Surveys are available in print or online. If you would like to participate, you can find the Surveys at the following links: GO4KIDDS Basic Survey and GO4KIDDS Extended Survey, or you can also contact us by phone or email to request a paper copy.
Participants who complete both Surveys are eligible to receive an honorarium of $50.
Researchers: Dr. Adrienne Perry, Dr. James Bebko, Dr. Patricia Minnes & Dr. Jonathan Weiss
Development of Precursory Language Skills, Non-Verbal Communication Skills and Joint Attention for Children with Autism Disorder: A longitudinal Prospective Approach
This study is evaluating the effectiveness of Developmental Individualized Relationships-based therapy (DIR)/Floortime for children with autism aged 2-4 years. This therapy will be provided to you for one year at no cost as part of the study. Your child's progress will be evaluated while receiving treatment.
Contact: 416-736-2100 X. 20401 OR www.mehri.ca/intervention